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Cystic Fibrosis - The Facts

Cystic Fibrosis (CF) is one of the UK's most common life-threatening inherited diseases affecting over 11,000 people in the UK (approximately 950 people in Scotland), that's 1 in every 2,500 babies born.  Over two million people in the UK carry the faulty gene that causes Cystic Fibrosis - around 1 in 25 of the population.

In the UK babies are usually diagnosed following the Guthrie test (heel prick test) carried out shortly after they are born.

Cystic Fibrosis is a systemic condition affecting every organ in the body but predominantly the lungs and digestive system, by clogging them with thick sticky mucus. This makes it hard to breathe and digest food.

CF patients must follow a rigorous daily treatment programme including physiotherapy, nebulisers, medication, exercise and nutrition.

Each week, five babies are born with Cystic Fibrosis.

Each week, two young lives are lost to Cystic Fibrosis.

Although there is no cure for Cystic Fibrosis, recent advances in medical treatment will add years and quality of life to those affected by the condition.


The Leanne Fund
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