The Leanne Fund is marking 10 years’ service to people with Cystic Fibrosis with a call for people to contribute 100 Moments from Leanne - their own positive memories over a decade of the charity’s work.
The Leanne Fund has been helping to enrich life for people with CF and their families since 2010. Now they’re calling on anyone who has benefited to help demonstrate the charity’s long-time claim, that life is for living.
Leanne Mitchell passed away due to Cystic Fibrosis in 2009, at the age of 21. In her memory, The Leanne Fund was set up in 2010 by her family and has since expanded from their home in the Isle of Lewis to cover the whole of the Highlands and Islands, Grampian and Tayside NHS regions.
Development manager Chrisetta Mitchell said: “One of the things we learnt through Leanne is how important it is to live life with positivity and to treasure the good moments. Leanne had an incredible strength and determination to live life to the full, making the most of every precious moment. Her life was inspirational and the fund represents her heartfelt desire to bring happiness to others.”
It’s that positivity that has inspired ‘100 Moments from Leanne’. Supporters, Cystic Fibrosis sufferers and family members all have moments to share – whether of an achievement, a precious memory, or a time when The Leanne Fund has simply lifted their spirits.
Among the first to bring their memories forward was Chrisell Macleod, a Leanne Fund supporter from the Isle of Lewis. She said: “It was the year I was going to be fifty and I could not have spent it in a more gruelling training regime, to walk 100 miles for Leanne, but I would not change it for the world. I was about to find out all about the amazing work of the Leanne Fund and make life-long crazy friends.”
And CF sufferer Eden of Huntly said: “My favourite moment was when Chrisetta and Willie Mitchell came to my school Christmas Fayre to my hama bead stall, which was raising money for The Leanne Fund. I am very lucky and have lots of great equipment to make physio at home fun and I got a great hamper when I had my first stay in hospital before Christmas. I do fundraising every year to say thank you for all they do for me!”
Moments like these, contributed to the charity in words or pictures throughout the anniversary year, will be shared – anonymously if that’s preferred – through social media and on display in the Stornoway office. In this way they hope to spread the rainbow of supportive emotions that has kept the charity strong for a decade.
The Leanne Fund itself has a number of reasons for feeling positive about 2020, with the appointment of their second staff member and the beginning of a year-long programme of fundraising events.
Anne Nicolson from Tong has started work as a part-time administrative support officer, thanks to additional funding from the Tayside Community Innovation Fund. She’ll be available at the Leanne Fund’s office every morning, five days a week, and can be reached on 01851 702020.
Chrisetta Mitchell said: “It’s really good to get an extra person regularly in the office, freeing up more time for me to concentrate on work across the large area of Scotland where we now provide support. It means that I can be out of the office, knowing that I am leaving the work in capable hands.”
The work includes planning this year’s Rainbow Raiser on February 28th – a day for wearing colourful clothes, baking rainbow bakes and doing whatever it takes to lift spirits and raise funds.
The year will also see The Leanne Fund 5k and 10k in Point, tea in the Town Hall in Stornoway, sponsored places on the Aberdeen Kiltwalk and numerous collections across supermarkets and community events Scotland-wide.
If you’d like to contribute one of your memories for 100 Moments from Leanne, get in touch by email at firstname.lastname@example.org, follow on Facebook at https://www.facebook.com/theleannefund/ or on Twitter at https://twitter.com/TheLeanneFund
The Stornoway-based charity the Leanne Fund is to expand its activity into Tayside, thanks to £15,000 in support from the NHS Tayside Community Innovation Fund.
The new territory takes the Leanne Fund’s activity coast-to-coast across Scotland, from the Western Isles to Aberdeen and from Shetland to the central belt.
It’s a huge boost for the organisation, which already brings practical and emotional support, treats, complementary therapies and a positive attitude to more than 150 people living with the life-long condition in the Highlands and Islands, Moray and Grampian.
The Leanne Fund was founded in Point in 2010 by the family of the late Leanne Mitchell, who passed away at the age of 21. Working with a group of Western Isles supporters they set out to give real and practical help to those affected by Cystic Fibrosis. Their personal experience of treatment and available health services helped them to understand the very specific needs of CF patients and their families.
The Leanne Fund has now been delivering their unique and empathetic support across the Highlands and Western Isles of Scotland for nine years. Working from a base in Stornoway, the organisation expanded in 2016 to offer further support across Moray, Aberdeenshire, Orkney and Shetland and will now also provide support in Angus, the City of Dundee, Perth and Kinross.
The funding will allow a new post, advertised this week, to be created in Stornoway. Development manager Chrisetta Mitchell will be joined in the Point Street office by an administrative assistant, freeing her time to develop personal relationships with more CF patients and their families.
Patients and families will be able to choose from existing services such as Pamper Hampers – mood-lifting packages of snacks and toiletries for patients undergoing lengthy hospital admissions. Complementary therapies, counselling and support through the Get Active fitness programme will also be extended to up to 71 new contacts in Tayside.
The new post is to be advertised this week (Friday October 4th) and the service delivery in Tayside is scheduled to begin on November 4th.
Development manager Chrisetta Mitchell said: “The NHS Tayside Community Innovation funding is a huge boost to the Leanne Fund. We always want to help more people but we have to take things slowly to ensure that our support remains consistent to the people with Cystic Fibrosis in all the regions where we work.
“My own workload has not so far allowed the additional time for this expansion, but an additional member of staff will deal with duties such as organising our own fundraising events, admin and secretarial support. This will free up a significant portion of time, in which the great successes we’ve seen in growing the work of The Leanne Fund can progress into Tayside, as we have seen in other NHS regions.
“Cystic Fibrosis is a life-limiting, progressive disease and the burden of treatment and permanent presence of symptoms can be very stressful. We focus on creating services which meet the needs of individuals, because no two patients are exactly the same, and on creating happy memories now to last a lifetime.
“Our aim is to help children and young people affected by CF and their families have access to services and funds that make life a little easier. We can’t wait to offer that service in Tayside.”
NHS Tayside Community Capacity Building officer, Richard McIntosh said: “NHS Tayside Community Innovation Fund is delighted to support the Leanne Fund.
“Their services are new and innovative and will benefit the health and wellbeing of people living with Cystic Fibrosis across Tayside.”
A pair of handcrafted one-of-a kind musical instruments are to be auctioned off in aid of The Leanne Fund.
Dr Ali Whiteford of Garrabost, Isle of Lewis, who makes and repairs string instruments, has created a beautiful bespoke Long Island guitar and a Mandocaster mandola and has kindly offered to sell them to raise funds for those affected by Cystic Fibrosis.
The instruments are the fruits of labour of Dr Whiteford who is well known luthier and musician.
Anyone wishing to view the instruments can contact The Leanne Fund office on 01851 702020 or email email@example.com. Bids for the guitar will start from £600 and £400 for the mandola. Sealed bids should be sent to or hand delivered to The Leanne Fund office before 5pm on July 31st.
Chrisetta Mitchell, Development Manager for The Leanne Fund said: “We are so grateful to Ali for offering to auction these beautiful instruments in aid of The Leanne Fund.
“They are stunning unique instruments and we’re sure there will be a lot of interest in them.”
Describing the inspiration behind each instrument Dr Whiteford said:
Long Island guitar
The inspiration to make this instrument came a number of years ago whilst at a concert in the An Lanntair Arts Centre given by well known local singer/songwriter/musician Willie Campbell. The stage backdrop to Willie’s performance was a large map of the Western Isles, the most northerly isle being the Long Island of Lewis and Harris. For one number, Willie was playing a solid electric guitar. The outline of the Long Island, with the large indent of Broad Bay seemed a natural fit for the body of a guitar, Broad Bay coinciding with the neck cut-away in the body of a guitar which allows for easy playing at the top end of the neck. The immense amount of musical talent that lurks in these islands was the other inspiration. With other things on the go the idea was put on the back-burner until a couple of years ago when I was given a Fender Stratocaster copy in payment for some repairs to various guitars. The neck from this guitar became a donor item as did the selector switch.
The body is made of ash and mahogany, ash being used for Lewis and mahogany for Harris. The thickness of the body was carved to give a comfortable playing position and reduce weight. An exact outline of the coastline for the body would not lead to a stable structure so the coastline is defined by using an inlay of black ebony wood. The chrome pickups are Artec Vintage units and the potentiometers are long shaft items. The ends of the tremolo arm and the selector switch are carved mahogany with chrome ends. To keep the front of the instrument clean, the jack plug is on the back, behind Harris. In the middle of the Point region of Lewis, just below the Broad Bay cutout, is a mother-of-pearl dot indicating where the instrument was made - Garrabost. The neck end is covered in iconic Harris Tweed, with the truss rod cover being a Harris Tweed label. The Harris Tweed has not been varnished so that it remains tactile but the edge has been treated to avoid fraying. The body was finished in seven coats of gloss varnish which was then treated with steel wool to give a satin matt finish.
To give the instrument some soul, it was handed over to well known island guitarist and guitar technician, David ‘Doylie ‘ Macdonald, who worked his magic to produce an instrument with a good action and excellent tone. As part of the set-up, David replaced the bridges with steel units, set the action using a neck gauge, reworked the nut and wired the pickups to his own spec with separate tone controls for the neck and bridge pickups.
I am no connoisseur of electric guitars but when I first heard David playing it -the first time I had heard it make a sound - the hairs on the back of my neck stood up! He is a genius.
The mandola was designed and built as a result of a commission for a solid electric instrument but, subsequently, the commissioner sadly passed away. The instrument has elements of Stratocaster design in the neck end and scratch plate. The neck, made from mahogany, runs straight through the body - eliminating the need for a neck/body joint - with the body being built up with ash, again with the thickness carved for comfort and weight. The finger board is made from ebony with mother-of-pearl inlay dots and a bone nut and fretted with medium-fine gauge wire. The bridge and string bar are aluminium with the bridge being free as in mandolin construction. The instrument is tuned a fifth below a mandolin with the strings in pairs from tenor A through D and G to bass C. The pickup is an Artec Vintage with a simple circuit with a volume control. The mandocaster, finished in high gloss, has a good action and produces a bright sound.