Ten years of The Leanne Fund was marked in the Scottish Parliament last week with a motion put forward by Isles MSP Alasdair Allan.
Mr Allan congratulated the charity for the significant achievements in providing support to those with Cystic Fibrosis and their families across the Highlands and Islands and Grampian regions.
He said: “The Leanne Fund is an incredible charity which we are lucky to have. It’s even more inspirational when you consider how the charity began, and the work Chrisetta and the other volunteers had to put in to establish the charity and to support people with cystic fibrosis and their families.
“I was delighted to put down a motion in the Scottish Parliament marking their tenth anniversary. I hope the next ten years are at least as successful.”
The motion was supported by cross party members of the Scottish Parliament.
Chrisetta Mitchell, Development Manager of The Leanne Fund said: “The Leanne Fund has progressed so much over the last 10 years which has allowed us to expand to other areas and increase the level of support services we provide.
“We are very pleased that the work of our charity has been noted in the Scottish Parliament and we thank our MSP Alasdair Allan for putting this forward.”
The motion stated:
“That the Parliament congratulate the Leanne Fund, considers that is it the foremost Cystic Fibrosis charity organisation in the Highlands and Islands and Grampian regions, praises its achievements in providing psychological, emotional, social, physical and financial support to those with the condition and their families; recognises the legacy of Leanne Mitchell, who passed away from the condition aged 21, of helping others and giving individuals the opportunity to live their lives to the fullest extent and with a joyful heart; commends the Mitchell family and the entire Leanne Fund organisation for their continued tireless support of individuals living with Cystic Fibrosis and their families, and wishes them continued success in the years to come.”
The Leanne Fund is marking 10 years’ service to people with Cystic Fibrosis with a call for people to contribute 100 Moments from Leanne - their own positive memories over a decade of the charity’s work.
The Leanne Fund has been helping to enrich life for people with CF and their families since 2010. Now they’re calling on anyone who has benefited to help demonstrate the charity’s long-time claim, that life is for living.
Leanne Mitchell passed away due to Cystic Fibrosis in 2009, at the age of 21. In her memory, The Leanne Fund was set up in 2010 by her family and has since expanded from their home in the Isle of Lewis to cover the whole of the Highlands and Islands, Grampian and Tayside NHS regions.
Development manager Chrisetta Mitchell said: “One of the things we learnt through Leanne is how important it is to live life with positivity and to treasure the good moments. Leanne had an incredible strength and determination to live life to the full, making the most of every precious moment. Her life was inspirational and the fund represents her heartfelt desire to bring happiness to others.”
It’s that positivity that has inspired ‘100 Moments from Leanne’. Supporters, Cystic Fibrosis sufferers and family members all have moments to share – whether of an achievement, a precious memory, or a time when The Leanne Fund has simply lifted their spirits.
Among the first to bring their memories forward was Chrisell Macleod, a Leanne Fund supporter from the Isle of Lewis. She said: “It was the year I was going to be fifty and I could not have spent it in a more gruelling training regime, to walk 100 miles for Leanne, but I would not change it for the world. I was about to find out all about the amazing work of the Leanne Fund and make life-long crazy friends.”
And CF sufferer Eden of Huntly said: “My favourite moment was when Chrisetta and Willie Mitchell came to my school Christmas Fayre to my hama bead stall, which was raising money for The Leanne Fund. I am very lucky and have lots of great equipment to make physio at home fun and I got a great hamper when I had my first stay in hospital before Christmas. I do fundraising every year to say thank you for all they do for me!”
Moments like these, contributed to the charity in words or pictures throughout the anniversary year, will be shared – anonymously if that’s preferred – through social media and on display in the Stornoway office. In this way they hope to spread the rainbow of supportive emotions that has kept the charity strong for a decade.
The Leanne Fund itself has a number of reasons for feeling positive about 2020, with the appointment of their second staff member and the beginning of a year-long programme of fundraising events.
Anne Nicolson from Tong has started work as a part-time administrative support officer, thanks to additional funding from the Tayside Community Innovation Fund. She’ll be available at the Leanne Fund’s office every morning, five days a week, and can be reached on 01851 702020.
Chrisetta Mitchell said: “It’s really good to get an extra person regularly in the office, freeing up more time for me to concentrate on work across the large area of Scotland where we now provide support. It means that I can be out of the office, knowing that I am leaving the work in capable hands.”
The work includes planning this year’s Rainbow Raiser on February 28th – a day for wearing colourful clothes, baking rainbow bakes and doing whatever it takes to lift spirits and raise funds.
The year will also see The Leanne Fund 5k and 10k in Point, tea in the Town Hall in Stornoway, sponsored places on the Aberdeen Kiltwalk and numerous collections across supermarkets and community events Scotland-wide.
If you’d like to contribute one of your memories for 100 Moments from Leanne, get in touch by email at email@example.com, follow on Facebook at https://www.facebook.com/theleannefund/ or on Twitter at https://twitter.com/TheLeanneFund
The Stornoway-based charity the Leanne Fund is to expand its activity into Tayside, thanks to £15,000 in support from the NHS Tayside Community Innovation Fund.
The new territory takes the Leanne Fund’s activity coast-to-coast across Scotland, from the Western Isles to Aberdeen and from Shetland to the central belt.
It’s a huge boost for the organisation, which already brings practical and emotional support, treats, complementary therapies and a positive attitude to more than 150 people living with the life-long condition in the Highlands and Islands, Moray and Grampian.
The Leanne Fund was founded in Point in 2010 by the family of the late Leanne Mitchell, who passed away at the age of 21. Working with a group of Western Isles supporters they set out to give real and practical help to those affected by Cystic Fibrosis. Their personal experience of treatment and available health services helped them to understand the very specific needs of CF patients and their families.
The Leanne Fund has now been delivering their unique and empathetic support across the Highlands and Western Isles of Scotland for nine years. Working from a base in Stornoway, the organisation expanded in 2016 to offer further support across Moray, Aberdeenshire, Orkney and Shetland and will now also provide support in Angus, the City of Dundee, Perth and Kinross.
The funding will allow a new post, advertised this week, to be created in Stornoway. Development manager Chrisetta Mitchell will be joined in the Point Street office by an administrative assistant, freeing her time to develop personal relationships with more CF patients and their families.
Patients and families will be able to choose from existing services such as Pamper Hampers – mood-lifting packages of snacks and toiletries for patients undergoing lengthy hospital admissions. Complementary therapies, counselling and support through the Get Active fitness programme will also be extended to up to 71 new contacts in Tayside.
The new post is to be advertised this week (Friday October 4th) and the service delivery in Tayside is scheduled to begin on November 4th.
Development manager Chrisetta Mitchell said: “The NHS Tayside Community Innovation funding is a huge boost to the Leanne Fund. We always want to help more people but we have to take things slowly to ensure that our support remains consistent to the people with Cystic Fibrosis in all the regions where we work.
“My own workload has not so far allowed the additional time for this expansion, but an additional member of staff will deal with duties such as organising our own fundraising events, admin and secretarial support. This will free up a significant portion of time, in which the great successes we’ve seen in growing the work of The Leanne Fund can progress into Tayside, as we have seen in other NHS regions.
“Cystic Fibrosis is a life-limiting, progressive disease and the burden of treatment and permanent presence of symptoms can be very stressful. We focus on creating services which meet the needs of individuals, because no two patients are exactly the same, and on creating happy memories now to last a lifetime.
“Our aim is to help children and young people affected by CF and their families have access to services and funds that make life a little easier. We can’t wait to offer that service in Tayside.”
NHS Tayside Community Capacity Building officer, Richard McIntosh said: “NHS Tayside Community Innovation Fund is delighted to support the Leanne Fund.
“Their services are new and innovative and will benefit the health and wellbeing of people living with Cystic Fibrosis across Tayside.”